Over the last several years I’ve read a number of books on epilepsy and PNES some more scholarly than others, but all interesting in their similarities and differences.
I’ve listed them here for your reference, I hope you find them useful.
- In Our Own Words by Mary Martiros, M.Ed., and Lorna Myers, Ph.D.
- Psychogenic Non-Epileptic Seizures: A Guide by Lorna Myers, Ph.D.
- In Our Words by Markus Reuber, Gregg Rawlings, and Steven C. Schachter
- Seized: Temporal Lobe Epilepsy as a Medical, Historical, and Artistic Phenomenon by Eve LaPlante
- Patient HM: A Story of Memory, Madness, and Family Secrets by Luke Dittrich (grandson to the surgeon who operated on patient HM)
- Unashamed and Unafraid by Allison Hegedus
- Web was Woven: Epilepsy and Depression by Sonny Chase
- Surviving Wonderland Living with Temporal Lobe Epilepsy by Sharon R. Powell
- Beyond My Control: One Man’s Struggle with Epilepsy, Seizure Surgery & Beyond by Stuart Ross McCallum
- A Mind Unraveled, A True Story of Disease, Love, and Triumph by Kurt Eichenwald
- Lowering the Shield – Overcoming Psychogenic nonepileptic seizures by John Dougherty
- The Color of Seizures: Living with PNES by Kate Taylor and Jeffrey Underwood (RN)
- View From The Floor by Kate Berger
And just for fun 😊Things I Learned From Falling – A Memoir by Claire Nelson. This isn’t about epilepsy or PNES, it’s about a woman who fell in the desert, broke her pelvis and lay there for 4 days before being rescued.
Bits and pieces of this book resonated with me.
How she suppressed her emotions
Didn’t ask and refused help from everyone
She’d closed herself off from the world because she didn’t know how to express herself.
A great book!
I highly recommend it.