The Power of Nurses

Living with a chronic illness/disease, the focus is placed on a number of things: Often times, there are elements forgotten in the day-to-day struggles, the physical and emotional effects, and access to care. For me, personally, many of these areas were missing in the early days of my epilepsy diagnosis. The lack of resources, education,… Continue reading The Power of Nurses

I Just Remembered..

The memory is a funny creature. Sometimes preferring to hide away in its lair, hibernating until it awakens, rising to the surface slowly like a bubble weaving and bobbing its way to the top. Or so it seems to me.The brain stores, somewhere amongst the million or more neurons, thoughts and feelings in neat little… Continue reading I Just Remembered..

Boundaries and limits

After receiving my epilepsy diagnosis, I spiralled into a state of shock, disbelief, fear, and , yes, self pity. Emotions I’ve spent decades burying rushed to the surface. Sadness, anger, grief, and even guilt. It’s taken a long winding road full of hills and valleys, moving along narrow rocky paths inches from the edge of… Continue reading Boundaries and limits

The Art of Perfection (or is it a curse?)

The art of perfection takes years to perfect, yes pun intended. My lessons began at an early age and growing up in the 60s and 70s, we didn’t mince words. The world was seen in shades, not colour. I recall old adages relating to ‘doing things right’ ‘haste makes waste’ and ‘if you want something… Continue reading The Art of Perfection (or is it a curse?)

Introspection

{Long post warning} A thought occurred to me this morning, one of those AH-HA moments where the realization of something that’s bounced around in the crevices of your mind now appears as Johnny did in The Shinning. In the early days since my epilepsy diagnosis, I journalled writing down every thought, fear, frustration, and anything… Continue reading Introspection

People and Places

Over the years since my epilepsy diagnosis, I’ve encountered all sorts of individuals and found myself in places I never imagined. Almost 2 years after my sentencing, I’d hadn’t connected with anyone, other than my old boss, who had epilepsy or knew what I was experiencing. I had my sister, of course, a medical professional… Continue reading People and Places

I am Numb

It’s true what they say about being depressed—you’re  the last one to know. It’s as if we can’t recognize the signs, or we don’t want to. The old,’ if I can’t see it, it’s not real’ philosophy. But with everything else in life, you can’t wish things away. If you turn your back on it,… Continue reading I am Numb

Because I Said So

Growing up, dad drilled a ton of old sayings into me and my siblings, for the sole purpose of keeping us in line while pretending to offer ‘fatherly’ advice. His favourites were, [“if you’re going to do something, do it right the first time.” “Because I said so.”  “You’ll live.” And yell, “ELBOWS OFF THE… Continue reading Because I Said So