Have you ever wondered what it would be like to live in someone else’s shoes? To walk a mile or two going through what they do? Ever asked yourself what it feels like to be sick, really sick? To experience those bad days hoping for the good? Do you even know what pain is? How… Continue reading Open Hearts and Open minds
Tag: FND
Life: a curve ball gone squirrelly…a black & white picture exploding in colour…a mystery and a gift.
Reality is the real versus pretend. The actual, not the possible. No make-believe, wishes, or lies. Reality is what happened , not what you feared. It’s the outcome of events of which you cannot control. It isn’t always black and white, positive, negative, or right vs wrong. Reality just is… Let me tell you a… Continue reading Life: a curve ball gone squirrelly…a black & white picture exploding in colour…a mystery and a gift.
Recovery
Happy New Year—one month late. Whether you live with epilepsy, pnes, or both, and no matter the frequency of your seizures, the recovery period isn’t just regaining the physical balance, returning to your baseline as neurologists state, it also encompasses the mind. That emotional aspect of ‘not again’ what did I do wrong? How could… Continue reading Recovery
the art of tattoo
OMG..this is so long overdue… As some of you may know, since moving to Calgary, I’ve gotten some tattoos. yes, shocking isn’t it? Don’t ask me why because I don’t know. I’m going to blame my location to the tattoo parlour, it’s only a few steps from my building. All too convenient I’ll say. But.… Continue reading the art of tattoo
The Power of Nurses
Living with a chronic illness/disease, the focus is placed on a number of things: Often times, there are elements forgotten in the day-to-day struggles, the physical and emotional effects, and access to care. For me, personally, many of these areas were missing in the early days of my epilepsy diagnosis. The lack of resources, education,… Continue reading The Power of Nurses
The Art of Perfection (or is it a curse?)
The art of perfection takes years to perfect, yes pun intended. My lessons began at an early age and growing up in the 60s and 70s, we didn’t mince words. The world was seen in shades, not colour. I recall old adages relating to ‘doing things right’ ‘haste makes waste’ and ‘if you want something… Continue reading The Art of Perfection (or is it a curse?)
Getting Out and About
It’s Spring! Or it’s supposed to be! Calgary saw a few little flakes of ‘dandruff’ yesterday, or was it the day before? I can’t keep track of the days anymore. They just float by, just like that white stuff we all wish would go away! But we did have a few spring-like days recently. The… Continue reading Getting Out and About
Here We go Again…
The mind is a mysterious place. I felt good. Life was moving along. The new support group for the seizure unit given the green light. Another laser surgery to treat my glaucoma booked, my twice weekly volunteer shifts at the hospital going well, the only box not ticked was my sleep. I’d managed a mere… Continue reading Here We go Again…
Don’t Worry be Happy
Not my most favourite song, to be honest, but the right sentiment is there. That, and Don’t sweat the small stuff. Take it with a grain of salt. Like water running off a duck’s back. Grin and bear it. This piece is dedicated to all my fellow epilepsy and pnes patients and the lives they… Continue reading Don’t Worry be Happy
I GET NO RESPECT
PNES is not a topic the general population is aware of, even less so than epilepsy. Being a psychological disorder, it’s lumped in with all the others and disregarded. At least in my opinion and limited experience with it. Ironically enough, and I may be wrong, there seems to be more books out there by… Continue reading I GET NO RESPECT