It’s been more than 2 years since I received my PNES diagnosis and my reactions when informed said seizure was non-epileptic vs epileptic, is the same today as it was the first time they told me. Even after all the reading and research I’ve done, I still feel disbelief and disappointment. Definitely not relieved. My… Continue reading It’s not Your Fault
It’s funny how certain memories will rise up and smack you in the face, a little reminder of days gone by sent as a wakeup call or to see where you where and how far you travelled. One thing I promised myself when I moved to Calgary was, I’d take part in research projects and… Continue reading I remember when …
Not my most favourite song, to be honest, but the right sentiment is there. That, and Don’t sweat the small stuff. Take it with a grain of salt. Like water running off a duck’s back. Grin and bear it. This piece is dedicated to all my fellow epilepsy and pnes patients and the lives they… Continue reading Don’t Worry be Happy
To Blame or not to Blame? Why is it after every seizure I ask myself, ‘what did I do wrong?’ How did I cause it?’ Each time, I have one, I still assume it was something I did to bring it on, that it’s my fault. Whether it’s epileptic or non, I believe it happened… Continue reading Is it me?
It’s weird how sounds bounce back, a replay of a moment, repeated word for word. Memories do that, triggered by the sight of something familiar, a scent, or a person, bringing forth a rush of emotion. In a way, seizures have an echo, not of the physical type, but purely emotional. Visiting the site of… Continue reading The Seizure ‘Echo’
PNES is not a topic the general population is aware of, even less so than epilepsy. Being a psychological disorder, it’s lumped in with all the others and disregarded. At least in my opinion and limited experience with it. Ironically enough, and I may be wrong, there seems to be more books out there by… Continue reading I GET NO RESPECT
PNES is diagnosed using some of the same technology as epilepsy. Electrodes (tiny discs the size of a dime) glued to the scalp and attached to an EEG (electroencephalogram), are used to confirm any electrical disturbances on the brain, specifically the neurons. Epileptic seizures are a result of misfiring neurons the discharges appear like earthquakes… Continue reading Psychogenic non-epileptic seizures [pnes]and Epilepsy
I never thought I was an anxious person and I don’t think I knew the true definition of anxiety until 2015. Or maybe a little before then. We all get those ‘butterflies’ in the stomach sensation, that ‘oh shit’ feeling from time to time. But, for me, it’s more than that. When it was just… Continue reading Anxiety, Fear, and Scared Shitless!
Whew!Now that my blog site has a basic framework, I can begin.I don’t have a guideline or objective on how often I’ll post, but I’m sure it’ll be more than once a month, could be twice, or weekly, possibly daily. It all depends on the day.To manage my anxiety and depressive states, I try to… Continue reading And, we’re off!
A whole other kettle of fish. Also known as PNES, psychogenic nonepileptic seizures is a common seizure disorder caused by psychological factors rather than epilepsy. The public has no idea what this is. To be fair, neither did I, until 2017. Trauma of one sort or other manifests itself in a myriad of ways from… Continue reading Psychogenic non-epileptic seizures