Have you ever wondered what it would be like to live in someone else’s shoes? To walk a mile or two going through what they do? Ever asked yourself what it feels like to be sick, really sick? To experience those bad days hoping for the good? Do you even know what pain is? How… Continue reading Open Hearts and Open minds
Tag: PNES
Recovery
Happy New Year—one month late. Whether you live with epilepsy, pnes, or both, and no matter the frequency of your seizures, the recovery period isn’t just regaining the physical balance, returning to your baseline as neurologists state, it also encompasses the mind. That emotional aspect of ‘not again’ what did I do wrong? How could… Continue reading Recovery
the art of tattoo
OMG..this is so long overdue… As some of you may know, since moving to Calgary, I’ve gotten some tattoos. yes, shocking isn’t it? Don’t ask me why because I don’t know. I’m going to blame my location to the tattoo parlour, it’s only a few steps from my building. All too convenient I’ll say. But.… Continue reading the art of tattoo
The Power of Nurses
Living with a chronic illness/disease, the focus is placed on a number of things: Often times, there are elements forgotten in the day-to-day struggles, the physical and emotional effects, and access to care. For me, personally, many of these areas were missing in the early days of my epilepsy diagnosis. The lack of resources, education,… Continue reading The Power of Nurses
I Just Remembered..
The memory is a funny creature. Sometimes preferring to hide away in its lair, hibernating until it awakens, rising to the surface slowly like a bubble weaving and bobbing its way to the top. Or so it seems to me.The brain stores, somewhere amongst the million or more neurons, thoughts and feelings in neat little… Continue reading I Just Remembered..
Boundaries and limits
After receiving my epilepsy diagnosis, I spiralled into a state of shock, disbelief, fear, and , yes, self pity. Emotions I’ve spent decades burying rushed to the surface. Sadness, anger, grief, and even guilt. It’s taken a long winding road full of hills and valleys, moving along narrow rocky paths inches from the edge of… Continue reading Boundaries and limits
The Art of Perfection (or is it a curse?)
The art of perfection takes years to perfect, yes pun intended. My lessons began at an early age and growing up in the 60s and 70s, we didn’t mince words. The world was seen in shades, not colour. I recall old adages relating to ‘doing things right’ ‘haste makes waste’ and ‘if you want something… Continue reading The Art of Perfection (or is it a curse?)
April in Review
Wow. Another month down. 😮 Here in Calgary, our April ‘showers’ were colder, heavier, and whiter than normal but the temperatures remained relatively mild. I mean, it is spring, isn’t it? Or at least, it’s supposed to be. In any case, the white stuff came, piled up a bit, melted, came again, melted, and is… Continue reading April in Review
Getting Out and About
It’s Spring! Or it’s supposed to be! Calgary saw a few little flakes of ‘dandruff’ yesterday, or was it the day before? I can’t keep track of the days anymore. They just float by, just like that white stuff we all wish would go away! But we did have a few spring-like days recently. The… Continue reading Getting Out and About
Introspection
{Long post warning} A thought occurred to me this morning, one of those AH-HA moments where the realization of something that’s bounced around in the crevices of your mind now appears as Johnny did in The Shinning. In the early days since my epilepsy diagnosis, I journalled writing down every thought, fear, frustration, and anything… Continue reading Introspection