When you spend so much time with doctors as I have, it’s a shock when you’re told, ‘you’re doing much better since I last saw you, and I think we can close your file. There’s no need for regular follow-ups, but my door is always open. I’m here if you need me.’ It’s good that… Continue reading Doctors—My Second Family
It’s weird how sounds bounce back, a replay of a moment, repeated word for word. Memories do that, triggered by the sight of something familiar, a scent, or a person, bringing forth a rush of emotion. In a way, seizures have an echo, not of the physical type, but purely emotional. Visiting the site of… Continue reading The Seizure ‘Echo’
PNES is diagnosed using some of the same technology as epilepsy. Electrodes (tiny discs the size of a dime) glued to the scalp and attached to an EEG (electroencephalogram), are used to confirm any electrical disturbances on the brain, specifically the neurons. Epileptic seizures are a result of misfiring neurons the discharges appear like earthquakes… Continue reading Psychogenic non-epileptic seizures [pnes]and Epilepsy
My time in the seizure unit was filled with tests, seizures, hockey games, Netflix, reading, puzzle books, and poetry. Sitting, or laying in a hospital bed, within a 9×9 cell, 20 or more electrodes crazy-glued to my head, and attached to a cord plugged into a computer mounted on the wall, was almost suffocating. The… Continue reading Foothills Poetry
I never thought I was an anxious person and I don’t think I knew the true definition of anxiety until 2015. Or maybe a little before then. We all get those ‘butterflies’ in the stomach sensation, that ‘oh shit’ feeling from time to time. But, for me, it’s more than that. When it was just… Continue reading Anxiety, Fear, and Scared Shitless!
Whew!Now that my blog site has a basic framework, I can begin.I don’t have a guideline or objective on how often I’ll post, but I’m sure it’ll be more than once a month, could be twice, or weekly, possibly daily. It all depends on the day.To manage my anxiety and depressive states, I try to… Continue reading And, we’re off!
A whole other kettle of fish. Also known as PNES, psychogenic nonepileptic seizures is a common seizure disorder caused by psychological factors rather than epilepsy. The public has no idea what this is. To be fair, neither did I, until 2017. Trauma of one sort or other manifests itself in a myriad of ways from… Continue reading Psychogenic non-epileptic seizures
Epilepsy is one of those medical conditions we all ‘know about’ may know someone with it, but don’t understand it. A family we know had a son with it, but I didn’t know him too well, I went to school with his younger brother and never witnessed his seizures. The first time I saw a… Continue reading Epilepsy, from my point of view
The following are my ever growing list of websites I’ve visited in my need to understand and validate my medical conditions. Known as the ‘answer girl’ by old colleagues, I’m like a bulldog at the opposite end of a juicy bone. No matter how long it takes, the urge, and driving need, to learn, and… Continue reading Helpful Resources: Websites
Born and raised in British Columbia, CanadaResides in Calgary, AlbertaI was officially diagnosed with epilepsy in 2015 at the age of 49, followed by a secondary diagnosis of Psychogenic Non-epileptic Seizures in 2019.I’m one of the 10-20% that live with both epileptic and non-epileptic seizures. Why this blog?My goal is to share the complexities of… Continue reading About Me